Tag: #chronicillness

Adrift

Adrift

Almost but not quite a flashback this week. I managed an hour in the hot tub without too many ill effects, which is definitely a cause for celebration (you may have noticed my absence for a few weeks). The last time I was able to 

Rest

Rest

I don’t do well in the heat. I am having to take time to rest as much as possible. Thankfully I have this amazing image to share taken by Molly. Anyone joining me?

Space

Space

There is something very wonderful about coming home from holiday. Somehow, your house has a new lease of life – it feels like walking into a fresh new space. Tucking yourself into your own comfortable bed again, knowing where everything is, feeling a sense of 

Held

Held

I feel dysregulated a lot of the time. It’s not surprising, as I am managing sensory overload in my body almost constantly, and it can be exhausting. Right now I am trying to write this while my pain is turned up to the high setting, 

Electric

Electric

Well these are not the type of electrodes I would like to be playing with, but lucky me, I get to wear a holter monitor all week! I think I am allergic to the adhesive, because those things ITCH. I was so relieved to take 

Wheels

Wheels

I can’t resist a dare. I think it stems from the unhappy experience of being the awkward kid in a hostile arena of other kids, feeling desperate to fit in with no idea how. I have several very embarrassing memories of following through on dares